Hope and Love

I believe this Diet is going to be my daughter's recipe for Health and Happiness. And I'm knocking on wood right now, just to be safe, but I am filed with hope. Hope, now that is something astronomical for a mother of a child with a progressive epilepsy disorder to feel. I feel a bit Obama-ish, with my "HOPE" mantra, but today I am officially declaring:

"YES WE CAN!"

Move Over, Mr. President!...

Destiny is the perfect "Keto Kid"! She loves fatty foods, and is just happy (98% of the time) to eat anything that I ask. I think she really understands that yummy food is now her medicine, and MAYBE she won't have seizures after awhile. She is definitely excited that maybe she'll get to ride her bike to the park again.

And the food is getting better! A definite learning curve for her mama that would much rather be hiking, at the park, playing games, pretty much anything than preparing meals. For breakfast she had her favorite blueberries (only 11grams though), 9 grams of bacon, 6 grams of egg (= to one measly bite! ;-), 8 grams of butter straight, 57 grams of what I call Strawberry Yogurt (I mixed Crystal Light with the Heavy Whipping Cream - she LOVED it!!!), and a 44 gram creamsicle (Heavy Whipping Cream and very expensive chocolate sugar-free drops frozen on a Popsicle stick), so now she can have a meal without cream later.

For Snack, she got 13 grams of celery, 10 grams of peanut butter, so we masterfully mixed as much butter as could fit with the peanut butter and heaped it on the little piece of celery. It is Delicious!

Destiny has to eat an insane amount of butter each day and much of the time it's its own side. I think back and Laugh...Less than a year ago, I would totally freak out because she'd sneak big spoonfuls straight from the butter bucket. First, I thought it plain nasty, but more than that, I assumed it would cause cardiac arrest or seizures! Oh, hindsight! HeeHeeHee!!

"Eat your butter, Honey!" I say with a smile.

Today is actually Day Four on the "Magic Food", and I wish you could see her eyes, peeps! - Magically clear and Happy! Almost...(And my deepest hope is that when we are allowed to decrease her meds, there will be no "Almost" I look at her and I cry. LOL! They're used to me crying happy tears! No seizures today - Zilch. Again, knocking on wood...

My good friend led me to a movie called, "First, Do No Harm" starring Meryl Streep. Now, the story behind this movie is worth reading. As I watched the following clips from "First, Do No Harm" I sobbed. It is not Destiny's story, by any means, but some of it is all too familiar. I begged neurology to do an EEG on Desty two/three years ago when she was having febrile seizures, increasing moments of staring, clumsiness, slow response, etc. I was repeated told she'd grow out of it, or it's just her flaky personality. Well, guess what experts? My baby grew into it! And now, oops, my princess has a potentially devastating syndrome. Thanks docs! IF, IF, all day long...moving forward!

Grab the Kleenex Box!

In this next clip, when Robbie says quietly, "I'm excited, Mommy" I see Desty (on bad days)...My heart bleeds ;-(

And finally...

I can only Hope with all of my Might, and Love in my Heart, that this new Lifestyle is the medicine that finally works! With that said, I have to go set up for dinner!