First, check out this video from Monday, when she was probably the healthiest child in this hospital with 298 beds.
Ketones are flowing in Princess Destiny's body now; glucose is averaging sixty. Monday night and yesterday morning were very literally filled with petite-mal clusters, and barf. Can you say Raggedy Ann?? Yesterday evening was much better, but a horrible night followed.
Here are a few video clips of Destiny today:
Yesterday we prepared Desty's meals for today.
BREAKFAST: 25g strawberries, 8g egg, 46g
cream, 9g bacon, and 12g butter
LUNCH: 47g cream, 18g cooked carrots, 12g skinless chicken breast, and 18g butter
SNACK: 46g cream, 6g purple grape, 36g beef frank Oscar Myer, and 6g buttery
DINNER: 46g cream, 36g cooked broccoli, 4g processed American Cheese, 8g lean ground beef, and 15g butter
Just one gram + or - is not okay. She is on a 4 fat to 1 carb ratio, gets 1350 calories/day, 20g protein/day and 43 oz of calorie-free fluid/day.
I will test her urine 2Xs a day to chart ketones, and once a week I will check her urine for blood and protein.
Obviously this "Blubber Diet" is not nutrition complete, so pill supplements are imperative - of course, supplements, medications, lip balm, toothpaste, sunscreen, ointments, shampoos, etc., must be 100% carb free!
I could be overwhelmed....LOL...I could be sad and scared and have any number of feelings. Oh who's kidding?! I AM ;-)
HOWEVER, my Love for this child of mine tramps my Trepidation, and if this is a mountain I have to move for this child to have healthier brain functioning and a fuller life, please bring it on, BRING IT ON!
(Please forgive the messy format? IPad and YouTube still have bugs to perfect for blogging.)